Category: Baby

Baby

Summer of 23

Featuredby motheringmillieLeave a Comment on Summer of 23
Summer of 23

Maternity leave with Crosby rolled into summer break. I printed off a checklist I found on Pinterest of fun ideas to make this summer enjoyable for the kids.

Beautiful dancing, colors, and music at the Asian Festival commenced our summer. We heard a guzheng performance, saw dragon kites, and ate lo mein noodles. We watched a Tai Chi studio performance; the movements were so fluid and mesmerizing. Millie danced with an Asian exercise dance group; Wells started to but quickly found his way back to holding my hand. Both kids got their faces painted for the first time; Mill got a rainbow arching from her forehead down her cheek and Wells got a Spider-Man web. He wasn’t thrilled that the artist was touching his face but he was happy when he looked in the mirror. They both colored Japanese opera masks and painted cherry blossoms using the bottom of a coke bottle. I bought an umbrella tree bonsai plant that Mill named Bonsai Bonsai the Bonsai.

During our first week together, we painted rocks for the garden; we painted a lemon slice, a rainbow, and a purple rock that said, brave. Millie and Wells both helped me in the kitchen; Mill helped by chopping vegetables for dinner and Wells helped by putting parmesan cheese on the garlic bread and dividing salad into bowls (not for him though because Wells doesn’t like salad).

We went to the library to register for the summer reading program and to see a children’s comedian, Mike Hemmelgarn. During his performance, Mr. Hemmelgarn juggled balls, performed magic tricks, and told jokes with balloons and puppets. Wells’ favorite part was when the skunk puppet sprayed (squirt gun) and Mill’s favorite part was when Mr. Hemmelgarn drew a face on a dry erase board and that face became a moving puppet!

After the show, Millie and Wells played with legos while I picked out some books; a ballerina book for Mill, a shark dog book for Wells, and a book called, Saying Goodbye to Lulu (we’re getting ready to have to say goodbye to my family dog, Brandy). I heard Wells say, “Mommy? Mommy?” We had to leave the library early because Wells had an accident. I was proud of him though, for telling me, and that he mostly held himself all the way across the library until we got to the bathroom.

Once it was officially strawberry pickin’ season, we took our buckets and went to the fields. My friend from work, Madison met us there. Wells would pick a berry, take a bite, and chuck it as far as he could throw. If he wanted to keep the berry, he’d toss it into the bucket and yell, “goal!” Crosby was perfectly content in the carrier, even as I bent down to pick berries. The strawberries were delicious and we shared them with my mom and maw.

We had a fun day swimming at Maw’s pool. It didn’t get warmer than 75 degrees but the kids swam until their lips turned purple. Wells hit the weight requirement for his puddle jumper (it’s blue with a shark on it) but he won’t trust the float. My mom held him in the pool all the while wearing the puddle jumper. Millie swam all around with her puddle jumper on and even floated on her back. Wells tried jumping into the baby pool but the bottom was incredibly slippery (last year Maw slipped when getting into it). He landed his jump but his feet slid from under him. He hit his head on the edge of the baby pool and we watched for concussion symptoms all night.

Millie had no interest in Taylor’s (my step-mom’s, granddaughter’s) softball game. Instead of watching, Millie spelled her name in the dirt with little sticks. Wells found larger sticks and played, “swords” with whoever would swing them around. After the game, we went to the Columbus Arts Festival and got the kids snow cones, pretzels, and lemonade. Millie saw her dance teacher and spun the prize wheel at her company’s stand. She won free tickets to the Nutcracker! Both kids rolled down the hill by the river with my dad. It was a good day.

Week two of summer vacation started off rainy. We played board games; Hi Ho Cherry-o and Candy Land. Millie started VBS at our church, that was cowboy themed, so I got her a new pair of boots to wear. She was so happy to see many of her friends from school. Each day they read scripture and prayed about trusting God in difficult situations. On her last day of VBS, Chris asked her what she learned and she said, “A lot and nothing.” VBS family night included songs (and dances) of praise, bounce houses, and a petting zoo that had a zebra. Millie was not scared to go down the big, blowup slide. The kids met a police officer and sat in the driver’s seat of a cruiser. My favorite part of the night was Wells doing the “cowboy dance” in the middle of the aisle. It was awesome to see both kids having fun while worshipping the Lord.

Wells continued to go to speech therapy twice a week. Since Crosby’s birth, in March, Chris has been taking Wells to his speech appointments. Wells is working on the f, c, s, sh, g, and t sounds. The toughest part of therapy is making sure Wells doesn’t fall asleep on the car ride there! When he wakes up from his car nap, he is not happy and the first ten minutes of therapy are useless. His therapist, Jody suggested that we only have appointments once a week instead of our usual twice a week. I was not keen to this notion as aggressive speech therapy is the best way to help with his Apraxia. People who hear Wells speak, continue to praise him for his hard work and how well he is sounding.

Millie received a birthday party invite from a friend in her pre-k class. It was held at the play place at our church. It was very much a “little girls” party; pink, sparkly, unicorns and rainbows. When a new girl would come through the door, the girls would run, scream, and hug each other. Millie wanted me to go with her in the play area but my gosh, it smelled like dirty feet. Still, I gratefully followed her because one day, she might not want mom to be there with her at parties.

On the same day that Millie had her friend’s birthday party, we had our cousin Lily’s 7th birthday celebration at Chuck E. Cheese. This was the first time my kids had ever been there and the first time Chris or I had been in over 20 years. There wasn’t a ball pit or jungle gym like we remembered; it was completely modernized with Kidz Bop projected on the wall and swipe cards instead of tokens. Millie and Wells played shooting games, rode on a small carousel, got into a machine that dumped balls on their heads, and rolled a ball that made a monkey eat bananas. Wells’ favorite part was the shark projected on the floor; he ran around trying to stomp on the fish. Millie ate three pieces of pizza with the cheese off. Both kids had a great time.

We rarely make it over to the East side of town so after the birthday party at Chuck E. Cheese, we took the kids to the outdoor mall. They were impressed with the life-sized, Lego giraffe and Lego Barbie creations. They both laughed when the stone frogs would spit water in the outdoor fountain. Wells wanted to take the coins out (he almost fell in). We took Millie to the American Girl store and she was so excited. Chris didn’t like being there however, my inner child was just as excited as Mill. She knew exactly what she wanted to get – the bitty, bitty baby from the Christmas catalog. She got the baby and a new pair of shoes for her doll, Kit.

After treating Millie, we went to Build-A-Bear for Wells. He had never been before. He chose a great white shark with a huge head. He threw it on the ground; mad. He said, “It’s flat!” He didn’t understand that he was going to get to stuff it. We looked through the different sound bites but we landed on puppy noises so that he could be, Shark-dog. We’ve been reading the Sharkdog books from the library. Chris and I were so impressed that the lady helping with the stuffing understood Wells when he said and spelled his name. Millie and Wells both put hearts in Sharkdog. The joy on Wells’ face was everything.

The weekend before Father’s Day, Chris and his dad took Millie and Wells to Home Depot to do a Kids Workshop activity. They wore orange aprons, painted, and had a lot of fun assembling table top putting greens. (During which I got some quiet, alone time with Crosby.) For Father’s Day, Millie gave Chris a mug that she picked out that said, “Dad Joke Pro” and he loved it. We went to church and the kids danced in the Praise House to the Cowboy Dance song; Wells is obsessed and his lasso moves are the best. After church, we spent the day with Chris’ parents, watching the Navy’s Blue Angels fly right above the rooftop. The Air Show was held in Columbus for the first time in over two decades and you could see the flights from my in-laws house. Neither kid was particularly interested in the air show; they were busy playing with badminton rackets. We ate a dairy-free, chocolate cake that Millie helped me bake and the kids fell asleep on the car ride home.

It rained everyday for the remainder of June. We did in-door activities to pass the time. We decorated cookies; Wells decorated blue dinosaurs and Millie decorated pink, sparkly tiaras. They were both most interested in eating the sprinkles. We created pictures using dot stickers, played with sensory bins (cornflakes and construction vehicles), sent cards to family members, built houses with magnet tiles, and read lots of books.

The kids were so excited to have a getaway weekend with Grandma and Grandpa. We planned to show them the Arc Encounter, the Newport Aquarium, and the Cincinnati Zoo. Unfortunately, the night before we were set to leave, Wells threw up and had diarrhea. I was really worried because his vomit was black and everything I found on Google said that could be a sign of internal bleeding. I called the pediatrician in the morning and she reassured me that the color was because of the amount of black food he ate (Oreo-O’s, black beans, Oreo cookies). She said that his symptoms sounded like a gastro-virus that would run it’s course within 72 hours.

Even though Wells was feeling under the weather, he still wanted to go on the trip. We packed up my in-laws new Expedition and drove to Kentucky. During the car ride, we found that Bob Marley’s, Three Little Birds, soothed Crosby when he would fuss; it was instantaneous. Millie practiced her sight words with Grandma in the third row. Wells slept.

At the Ark Encounter, the kids were scared of the sounds inside the exhibit and they did not want to look at the wax animals. Their favorite part was the playground. Wells said, “Thank you, Mommy for taking me here.” He led me through a maze, we raced, and we went on the see-saw together. I was super proud of Millie because she went on both zip-line rides (something she was too scared to try last year). Wells stayed hydrated by eating ice chips but by the time we got to the car, his temperature was 102.

We drove an hour to Cincinnati and checked into our hotel. We had an awesome view of a clock tower and we were on the same floor as the grandparents. We weren’t there 10 minutes before we changed into our bathing suits and went to the in-door pool. The water was the perfect temperature for Wells. It was the first time that Wells trusted his puddle-jumper and floated on his own! I sat on the steps of the pool, holding Crosby, and watched Chris swim and have fun with Millie and Wells. It was a beautiful time.

For dinner, we went to the hotel restaurant (they had an excellent soft pretzel). Wells ate a single french fry and threw it up later. Wells had a difficult night; fever and diarrhea. Crosby slept wonderfully for his first night away from home; he slept between me and Millie. Mill moves around in her sleep so I had to be mindful of how close she was getting to Crosby throughout the night. At one point, she hit her head on the headboard (it was really loud).

Morning came quick. We packed, ate pop-tarts, and loaded into the car on the way to the Newport Aquarium. Wells enjoyed looking at the different frogs; brightly colored poisonous frogs, big-eyed frogs, and frogs that stuck to the glass. Millie colored fish pictures with our initials on them with Grandpa. The fish were projected onto a digital screen. Both kids were super brave and walked across a tightrope bridge suspended over a tank full of sharks!

Before we went to the Cincinnati Zoo, we had lunch at an inner-city Skyline restaurant. The atmosphere was awesome and it was surrounded by brightly painted shops and a beautiful fountain. We went to the zoo and saw the hippos, Fiona and Fritz. Fiona was such a ham, kissing the glass and we saw Fritz kiss his daddy; it was so sweet. We got to see a tiger taking a bath, a snow leopard moving around the enclosure, and little lizards running around everywhere (I didn’t realize Ohio had lizards). Before we left, we stopped at the gift shop. Millie got a tie dye baseball hat that said, Fiona and Wells got a squishy ball in the shape of a shark.

July 4th was a special day. We had my mom and Maw over, Shauna, and Chris’ family, too. We ate and played corn hole. Once it got dark, we lit sparklers – Wells didn’t want to hold one; he tried on Memorial Day and didn’t like it. Millie did cartwheels in the yard while we watched the fireworks over the trees. Mawmaw lit Millie’s room with neon light sticks and the kids slept together through the sound of patriotic booms.

Millie would work on sight words at the breakfast table while Wells ate blueberry waffles (two, cut up, with butter on them, and syrup on the side). For every book that Mill read independently, she would get to add a pom-pom ball to her book worm, Maws idea, and she named it, Dotty. The word “the” gave her the most trouble. She could never remember it. Wells knew some sight words before the end of the summer; a, I.

Before lunch, we would play on the back patio in the baby pool and water table. The magnetic water balloons were the kids’ favorite toy this summer. They would trap their toys in the water balloons and throw them. Crosby got a water balloon to the cheek once – he’s a tough guy and didn’t even notice. Wells threw a water balloon at the back door at the same time that Chris was opening the door to ask me a question. Water got all over the hardwood floor but all we could do was laugh. It felt like heaven as Crosby slept on my chest, while I watched Millie and Wells water the flowers. Then, a fight would happen over the watering cans and I would heat up chicky nugs.

Dru and Uncle Nick wanted to take the kids putt-putting. This was their first time playing putt-putt golf. Millie of course, chose a pink ball. I was super impressed with how well she was lining up her shot and swinging the club. Wells mostly just ran all over the green. There were some arcade games in the lobby and Millie wanted to try the claw machine. She was impatient and hit the release button right over the drop shoot. She was devastated she didn’t win a toy (We explained to her that those games are rigged anyway). After the tears, we went out to eat at a Mexican restaurant and found out that Mill really loves chips and salsa (she still doesn’t like tomato’s though, she thinks they’re squirty).

Millie was invited to an open house at her ballet studio for a dance exploration event. Chris took her and I stayed home with the boys. We both got the start time wrong so she was there almost an hour early however, Millie was able to have one-on-one time with instructors and older ballerinas in the company and was able to take pictures with them in their performance costumes. She was most excited about the ice-cream truck that came at the end. Chris said she did a really great job.

Wells had a good experience at his first dentist appointment! He watched Millie go before him. The tech gave him a pair of Spider-Man sunglasses to wear and she didn’t turn on her head lamp due to Wells’ eye sensitivity. I remembered to prepare him about the chair moving (I forgot with Millie). His cleaning didn’t last longer than five minutes and we found out that he didn’t have any cavities! I was nervous, the boy loves his sweets.

Both boys had an appointment with Children’s ophthalmology. Mawmaw came with us. Unfortunately, Crosby has the same genetic syndrome that Wells does and after the examination, it was confirmed that he has stage 1 dry eye. Wells allowed the cornea specialist to look into his eyes instead of squeezing them shut like he’s done in the past. I was so proud of Wells for doing a good job at this appointment that I took him to a trampoline park for a thirty minute jump. He would run across the trampolines and it looked so funny; his torso stayed still while his little legs moved so quickly.

The KidzBop Live Tour came through Columbus and we bought tickets because Mill is obsessed. She was pumped to be going to this concert; I let her pick out her outfit. She completed her look with a unicorn bow and a fuzzy, fanny-pack. The concert was held at the fairgrounds. Waiting in line to get in, I ran into a teacher friend and a current student of mine. I was wanded before entry and Wells was insistent on being scanned too. He was so observant; he held out his arms and turned around just like he saw me do. The whole fam went to this concert, including Crosby with his headphones. We arrived early enough to eat a funnel cake before the show. Millie was bummed only 4 kids performed. A little girl sitting in front of us shared beaded jewelry with Mill. I bought Mill a tour shirt and Wells a hat. We left shortly after intermission- it was hot and loud. Their new KidzBop attire read, “KidzBop Never Stop” and we had fun on the car ride home changing the last word of that slogan. Wells’ was my favorite, “KidzBop never poops”.

My best friend Lindsey invited us to spend a long weekend at Posey Lake in Hudson, Michigan with her and her family at her grandmothers lake house. Millie had been asking to go to the beach all summer so she finally got her chance to play in the sand. Wells pretended to give me ice-cream cones made out of sand. I was very impressed with how much Millie wanted to be in the water. It was awesome to see her and Chris play together in the lake; he would jump off the dock and she would score him. He taught her to close her mouth when waves came. We took pontoon rides around the lake and spotted turtles sunning on logs. Both Millie and Wells got to drive to boat with Lindsey’s help. We made s’mores at night; Millie liked her s’mores with a Reese Cup (it’s amazing that they make plant-based chocolate bars). Chris, Crosby, and I slept in a full sized bed while Millie and Wells slept in their sleeping bags on the floor. While we were sleeping on the first night, Wells managed to get his head stuck under the bed. I think the kids’ favorite part was jumping on the trampoline with Logan and Ben.

When we got home from the lake, our pet fish Shark had gone belly up. He wasn’t floating at the top but he was gone. We had an inclination that the ammonia levels were too high (I had been over feeding him and I didn’t know that could be an issue). Chris and I discussed what to do and we thought it best to be honest with the kids about what happened to Shark. We explained that Shark’s water made him sick and that he was dead. Wells was very upset; he cried. He cried when we buried him in the backyard under the pine tree. We all decorated the box Shark was buried in and we put his favorite plant in with him. Wells cried the next morning when he couldn’t feed him. It was incredibly sad. We decided that we will get another fish but not quite yet. Wells already decided that our next fish’s name will be Shark Junior.

The kids really wanted to go to the Ohio State Fair to ride on rides since they didn’t get to go on any when we were there for the Kidz Bop concert. My Dad agreed to help me take them. It was the hottest day ever. Millie was too scared to go on the roller coasters with Papa but they went into the FunHouse together. While they did that, I paid a man behind the darts counter to let Wells win a prize; to my surprise, Wells popped two balloons with the darts and he won a blue lemur! My Dad took both Mill and Wells on their first Ferris wheel ride; they were very brave. I took the kids through a Spider-Man maze (I almost slid into Mills back going down the slide). We shared a lemonade, French fries, corn on the cob, and a giant pickle.

We moved the kids’ rooms! Millie was moved into what was the guest room, Wells moved into Mills old room, and Crosby finally got a space of his own, in Wells’ old room. Millie’s new room is attached to the bathroom, which we felt was fitting as she’s the only girl sibling. Millie’s room was inspired by Sawn Lake. She has pink walls and lily pad curtains. There are ornate, brass details; her lamp, curtain rod, and side table pulls. She loves the space and it was fun giving her a “big girl” room. Wells is out of his crib and in a toddler bed. It was an adjustment encouraging him to stay in his bed through the night. Sharks are everywhere; a shark jaw bone, shark blankets, and hanging shark decor. Crosby is using Wells’ crib. I created his name sign for above his crib and Little Bear decor.

Sending Millie off to Kindergarten was easy because she was so ready. I was proud to send her to school with the knowledge she already had and the faith of how much she would learn. Going back to school myself was not so easy. Crosby was refusing the bottle and it was stressing me out. Chris was able to use his last weeks of paternity leave to watch Crosby while I started back to work. He was able to push through while Crosby learned that Mama was going to be gone for many hours during the day. Like the doctors said, if he gets hungry enough, he’ll take the bottle. After 3ish weeks, it was a non issue.

Some of my favorite summer highlights;

– Millie holding a tarantula

– Wells and I chasing after the bunny who feasted on my petunias

– Chris and Crosby surprising me at work on my birthday

Summer came and like that, it was over. It always goes by so fast. Those cheesy sayings, “Time flies when you’re having fun.” or “The days are long but the years are short.” are infuriating because they are absolutely correct. I swear, having three kids speeds up the time even more. I’m already thinking ahead to next summer – Crosby will be walking, Millie will have a year of school under her belt, and Wells will be getting ready to start pre-k. Until then, they’ll grow and I’ll continue dreaming of summer.

Baby

Millie is a Kindergartener

Featuredby motheringmillieLeave a Comment on Millie is a Kindergartener
Millie is a Kindergartener

As Chris carried Millie up the stairs tonight, hot tears streamed down my face. My early baby, my special girl, starts Kindergarten tomorrow. Where has the time gone?

I remember sleep training Millie. Chris would carry her upstairs and her little hand would reach over his shoulder to wave at me. I’d say, “I love you, Mill Moo. Jesus loves you, angel.” One night, when Millie was maybe eighteen months old, Chris said, “Alright, it’s time for bed.” Mill was sitting on my lap and she waved at him as if to say, “Well, goodnight then daddy.” My sweet, sassy girl.

After church, I dressed Millie up in uniform and took pictures of her with a “back to school” sign displaying her age, height, and what she wants to be when she grows up – a ballerina, of course. (I figured it would make for a less stressful morning if we took pictures ahead of time.) Mill said her polo sleeves made her look like a prince and that the uniform should have included pink and purple. When I showed her the pictures I took of her, her response was, “I look so tall!”

We read, “On the Night Before Kindergarten”. I packed her a heart-shaped, butter and jelly sandwich (her school is nut free), carrots, strawberries, and Oreos in her Barbie lunchbox. She requested a chocolate chip granola bar for her mid-morning snack (and ended up eating Pringles instead).

Me, “Are you excited for tomorrow?” Mill, “I’m most excited about the tablet. I can’t wait to read the books on the internet.”

Me, “Do you think you’ll nap during quiet time?” Mill, “Maybe I’ll rest my eyes a little bit.”

Me, “Are you worried about anything?” Mill, “You know I’m brave. I’m not nervous.”

Millie woke up before the alarm and climbed into our bed. She said, “Today’s the day, it’s finally here!” We said affirmations in the mirror while I curled her hair. She ate French toast sticks for breakfast while Chris and Wells kicked the soccer ball in the kitchen. We all piled up in the car to take her to school as a family.

As she walked into the school, she stopped to wave back at us and show the I love you sign. I watched until her koala backpack had long gone into the building.

I asked Mill when she got home, “How was your day?” She said, “Kindergarten is the best!”

Baby

To My Pre-K Graduate

Featuredby motheringmillieLeave a Comment on To My Pre-K Graduate
To My Pre-K Graduate

Millie, my shining star, amaze me every. single. day. I remember receiving a card for my college graduation, from my grandmother, about stars. She told me how amazing she thought I was and that I was “a star amongst the stars”. I’ll be honest – my own self doubt, mean things people had said about me in the past, my anxiety about what was to come, never allowed me to let her words sink in. Here I am today, telling you how amazing I think you are, my shining star, a beacon of light in this crazy world, and I pray that you realize your worth. Your immense possibilities. Your chance to make every day, new. My grandma thought these things of me and my angel, she and everyone else that knows you thinks them of you.

You know that neither me or your dad went to pre-k? We had no idea how much you’d learn this school year. You blew me away with your knowledge of the Bible stories (the first time you said Israelites with your little voice, my heart melted). Your teachers love you. Goodness, I’m so incredibly proud of the work you’ve done this year and the person you are becoming.

A message from your Daddy: Mia, I want you to know that I am so proud of the little girl you’ve grown to be. You constantly surprise me with how much you’ve learned and how giving and social you are. You are always trying to help make sure that everyone around you is having just as much fun as you, whether it’s helping your dance classmates to get in line for an activity, reading your new book over and over again with everyone in the room, or practicing new jokes with me to make sure you can make the next person laugh. I love to see that your priority is always to bring joy to the people around you.

Every day that I picked you up from preschool this year, I just waited for that first moment that you see me pulling up. Because the smile that lights up your face when the door opens means the world to me. I hope that is the first reaction you get from seeing me forever, because I will always want to bring joy in your life.

I am so excited for you to start the next step in growing up, and I know you’re ready for it. You are going to love school, and I can’t wait to see how much you continue to grow and learn. As I’m writing this the morning of your graduation, you just came charging out of your room and yelled “today is the day!” Every single day you wake up with that same excitement to tackle new things. I’ll always be there cheering for you the whole way.

Happy Graduation Day, Millie Moo!

Baby

Jackhammers

Featuredby motheringmillieLeave a Comment on Jackhammers
Jackhammers

Blue balloons welcomed us home; it was Saturday. Millie and Wells both had special stuffed animals to give to their baby brother. A nurse at the hospital gave us stickers, “big sister” and “big brother”; they were so proud. They both took turns holding Crosby and kissed him on his head. I felt so good to be home.

To make sure Crosby was eating enough through the night, we supplemented with the soy-based formula from the hospital, in addition to my breast milk. He was lethargic from being jaundiced and didn’t want to wake to eat. My milk had finally come in; I was pumping at least 3oz of white, thin milk every session. We made an appointment with the pediatrician for Monday morning for a weight check.

We were unable to book Crosby’s appointment with our regular pediatrician because her schedule was full so we had to see another doctor in the practice whom we didn’t know. When we were checking Crosby into his appointment, the receptionist asked if we had been exposed to Covid in the last ten days. I was honest and told her that I was currently Covid positive (I should’ve lied). We waited a long time before the doctor’s assistant came out to inform us that I could not go back into the room with Crosby; I was told that I could go to my car and they would put me on speaker phone for the visit. Oh heck no. I said, “It has been five days since I tested positive for Covid. If I wasn’t on maternity leave, I’d be expected to go back to work today and teach 500 children. Why can’t I be in the room, masked, with my newborn?” The aide came back after speaking with the doctor and said I was allowed to go back into the room with Crosby.

The medical assistant stretched Crosby out on the table and measured him an inch shorter than what he was measured at the hospital. He shrunk? My emotions were already heightened from the debacle in the waiting room and now I definitely had an attitude. We took off Crosby’s clothes to weigh him and found that he had lost more weight since leaving the hospital. How? I couldn’t believe it. I felt so defeated. The doctor came in and immediately told us that we needed to take Crosby to Nationwide Children’s Hospital to run some tests because he was concerned that Crosby could have brain damage from the lack of nutrition. I got defensive, “My milk just came in. I’m going to take him home and feed him even more. We do not need to go to the hospital for testing.” The doctor told me that if I did not take Crosby to the hospital that he would call Children Services. With that, I started to cry, like ugly, gasping, desperate cry. The doctor asked to examine Crosby. He took one look at his umbilical cord and said, “You’re not only going to the hospital for his weight loss but I am calling the ID unit, Crosby has an infected umbilical cord.”

Omphalitis is an infection of the umbilicus and/or surrounding tissues, occurring primarily in the neonatal period. It is a true medical emergency that can rapidly progress to systemic infection and death, with an estimated mortality rate between 7 and 15 percent.

The doctor left the room to call the hospital to let them know to prepare a room. I was an emotional wreck; how did this happen? Chris and I both noticed that Crosby’s cord site looked different than Millie’s and Wells’ did, but we didn’t know it was from an infection. We felt like failures for not realizing something was wrong. Thankfully, while the doctor was away, our regular pediatrician came in to see us. She reassured me that I was doing everything right in regard to breastfeeding. She told us that if weight loss was the only issue, she’d send us home but she looked at his umbilical cord and agreed that we needed to get it looked at by the infectious disease doctors at the hospital. She explained that the umbilical cord is a direct portal to his insides and that we needed to treat the infection, quickly.

We rushed home and I packed a bag for me and Crosby. I had just cleaned out my hospital bags. I never expected to be packing them up again. When we checked in at the hospital, the receptionist gave Crosby a toucan chime-toy to hang on his car seat. It was a far walk to the infectious disease unit – probably too long for someone who had just given birth days before. Once we were in our room, a nurse came in and took vitals from Crosby. A resident doctor took pictures of Crosby’s umbilical cord site. It was decided that Crosby would be put on antibiotics for a possible infection. If the redness and swelling of the site went down, we’d know that the medicine was doing it’s job. We were warned that if Crosby were to have a drastic fluctuation in body temperature, they would have to perform a spinal tap. I prayed to God that a spinal tap would not be necessary.

Two nurses came to administer Crosby’s IV. They couldn’t find a vein in his little arm. It felt like an eternity that I sat and listened to my 5lb baby boy scream. Tears soaked my face mask. The blood they eventually were able to draw, clotted. I came up out of my chair. I asked, “How?” The nurse said, “It happens.” and continued to reassure the younger nurse that she was doing a good job. I said, “Doing a good job is keeping the blood viable from my son. You should be moving it!” When they were finally done taking multiple vials of blood, they capped the IV and swaddled him tight so that he couldn’t pull it out.

My face was so swollen from crying and Crosby was exhausted from crying. It was getting late and Chris and I decided that he would go home for the night to be with Millie and Wells. Chris helped me figure out how to order dinner. I set up my “bed” on the squeaky recliner chair next to Crosby’s metal crib. Chris didn’t want to leave me and Crosby. He said that leaving us in the hospital was the hardest thing he’s ever had to do.

I was trying to breastfeed but feeling so self conscious about how much I was getting so I was also pumping (which was not coming easily with the stress). I was asked to label my bottles and call the nurse anytime I pumped or needed the milk from the fridge. Every diaper that came off Crosby had to be weighed. We went through three swaddles that night; he peed every time I’d change his diaper. Between diaper changes, feeds, IV antibiotics rounds, and vital checks, I did not get any sleep. Around 3 am, Crosby felt cold to the touch. I frantically called the nurse and she checked his temp, which was normal, praise God. They found Crosby a baby hat and I watched the Elvis movie.

At 7am, the jack hammering started. Construction was taking place below our room. I couldn’t have slept if I wanted to. Chris came back just in time to hear from the doctors during their morning rounds. From what they could tell, Crosby’s umbilical site seemed less inflamed. His cultures had not grown. They told us that if he stayed on this trajectory, we could possibly go home at the 24 hour mark. With that good news, I was finally able to catch a few hours of sleep.

At the 24 hour mark, the doctors hadn’t come back in to speak with us. We asked our nurse if going home was still on the table and she told us, no. Every test resulted in Crosby responding well to the antibiotic and we were given no reason other than “further observation” for making us stay another night. I voiced that the hospital wanted us to stay because they could charge our insurance 10k a night for the room (a room with a squeaky chair and construction noise). If we chose not to stay, we’d have to sign a release saying we were leaving against the doctors wishes and in turn, our insurance might not pay for the services we received. We decided to stay for “further observation”.

We FaceTimed with the kids so that they could see Crosby and me. It was devastating telling them we weren’t coming home yet. Then the thoughts of never bringing Crosby home crept in and I couldn’t stop crying. I needed my kids, and sleep, but that I night I wouldn’t have either. Chris left to be with the big kids and I turned on some movie with J-Lo.

I was wearing a pad the length of my arm. My “bed” sheets kept slipping off the back of the second, squeaky chair. I was expected to log all feeds (which was incredibly difficult because once fed, Crosby would sleep on me and I was afraid that moving would wake him). Nurses were in and out of the room every two hours doing vital checks. IV antibiotics were administered every 8 hours which meant a 2AM beep and flush. I should’ve been drinking more water. All this to say, when the lactation consultant showed up in the morning, I was miserable to her. She wanted to weigh Crosby before and after a feeding and I yelled at her to get out. It was his infection that was making him lose weight, not my breast production. I was an emotional wreck and the jack hammering continued through morning rounds.

When the doctor came in, she saw that I was distressed. She was super comforting and reassured me that Crosby was getting better and stronger. She agreed that his swelling was lessening and that he was responding well to the treatment. Chris came in during her examination and we both exhaled when she told us that we would be discharged before noon. A nurse explained to us the schedule of his medicine and how much to give him. She told us that it would be most pleasant for Crosby if we gave him the medicine with him sitting up for 15 minutes. We were instructed to go to the pediatrician the next day for another weight check and exam. Before we left, I gave the nurse our left over meal cards for another family to use during their stay.

The pediatrician told us that because of the trauma to the umbilical cord site, Crosby could have a herniated belly button. If he does, he could need surgery before he turns five to correct it.

I desperately wish I could “re-do” Crosby’s first week in this world. We will never know how Crosby got an infected umbilical cord; could’ve been a nurse, the aide who bathed him, the doctor who circumcised him, even me.

Baby

IFAP cont.

Featuredby motheringmillieLeave a Comment on IFAP cont.
IFAP cont.

We found out about my compromised X chromosome when I was already pregnant with our third. We chose not to find out the gender and I prayed it was a girl; a girl who wasn’t a carrier. 9 months later, it’s a boy, Crosby, and he has IFAP.

Two weeks after Crosby was born, Wells had to go under anesthesia to remove his eye tubes (good for nothing) and for the corneal specialist to take a closer look at his eyes. After the procedure, the doctors informed us that there was no corneal scarring and no signs of early glaucoma – huge relief. There was eyelid inflammation and of course, the blockage of oil ducts. His dry eye is chronic; the flourometholone and erythromycin are helping with that. Overall, the ophthalmologist and corneal specialist agree that the treatment plan he’s currently on is definitely the best thing moving forward.

The summer time is the absolute worst for his dry, cracked feet. Flip-flops, chlorine, no socks – it was creating many deep cracks that sometimes bled. The Urea cream that we were prescribed (that we found cheaper on Amazon) wasn’t absorbing into his heels. Thankfully, my in-laws’ neighbor is a doctor and he was headed up to do some research at the Mayo Clinic. He offered to pull some information about IFAP for us which turned out to be incredibly helpful. He brought back a stack of papers – all related to, or resources for IFAP syndrome. I read through case studies that I hadn’t seen before. It was surreal reading about other boys with the exact condition as Wells. Three different children were treated with a medicine, Acitretin (10mg per day) and saw improvement in skin features. I reached out to the dermatologist right away.

The dermatologist said that Acitretin could smooth the rough texture of his skin and help with the cracking on the feet. She did not expect hair growth from the medication (all of the case studies from the Mayo Clinic said nothing helped the Alopecia). She explained that Acitretin is not a medication without side effects (skin drying out, possible growth abnormalities, high liver enzymes). There would be regular monitoring of blood work and x rays to safely have him on the medication.

We learned that Acitretin is usually used in treating psoriasis. Women cannot take this medication because it can cause reproductive issues. We read about people who have used and currently use this medication and weighed out the pros and cons. Wells can stop taking this medicine cold-turkey if we notice any negative side effects, it’s non addictive – it’s a vitamin A derivative, and you can start at a very low dosage and still see results. Some scary cons were lack of growth (already an issue if you have IFAP), chapped (to the point of cracking) lips, it’s only offered in capsulated form, and possible abnormal blood results. After careful consideration, we decided to try Wells on the Acitretin.

Wells’ preliminary blood results came back with elevated triglycerides. The dermatologist called me and asked if we fasted before the blood draw. I was like, “Nope. He ate TimBits.” My bad. Even still, we were given the green light to start the medicine. The Acitretin only came in capsule form so we were encouraged to give it to him by opening the pill and pouring the medicine onto something with high fat intake. We decided on whipped cream. Wells began taking the Acitretin and within two days, his skin felt smoother than it had ever been. He did get a gnarly sore on the corner of his mouth because his lips were so incredibly dry from taking this medication. It hurt him to open his mouth too wide especially when he was eating. We informed the dermatologist and she recommended we try taking the medicine every other day. I noticed that the daily vitamin that we were giving him also vitamin A, 100% of his daily value. We started giving Wells the Acitretin once every three days and the balance was perfect.

Crosby has the sandpaper textured arms and legs. His cheeks aren’t as bad as Wells’ were but they’re rough, too. He has two large, bald patches on the top of his head. His eyes water when we take him outside. His nose constantly runs. Until Crosby’s feet crack to the point of discomfort, he wont see the dermatologist. It’s a waiting game to see how many side effects he’ll have of this awful syndrome.

I was let down at our annual, geneticist appointment. Last year, I requested from the doctors to find us a support group for IFAP (didn’t happen). In fact, the doctor said I was the specialist on IFAP now and I know more about the syndrome than him, the doctor (real reassuring considering I don’t know a whole lot). We were told that the type of Alopecia the boys have is called, Atrichia, a rare, recessive form of alopecia where people are born with hair that falls out and is never replaced. Wells has a patch of hair like this and most of Crosby’s head has no hair. The rosemary oil we’ve been buying and putting on their scalp does no good; the hair loss is irreversible.

Nationwide Children’s hospital hosted a Rare Disease Day on March 1st, that my mother-in-law and I attended for knowledge about participation in research studies for the boys. Organizations like NORD and A Kid Again set up booths to spread awareness of their services. The MC spoke about rare diseases being embodied by the zebra; when you hear hooves, you think horses however, sometimes hooves can mean zebras!

The keynote speaker was a doctor and patient who discovered, and named, a rare disease. They were incredibly transparent about the research/patient experience (no one wants their children to feel like lab rats). We were informed of the website clinicaltrials.gov where we’ve already found studies both active and completed about parts of IFAP. Ichthyosis is really being researched in France.

At the end of the session, the MC asked for everyone in attendance to take a group photo. By chance, the doctor who spoke stood next to me! I asked her, “What should I do if our doctors aren’t looking into research studies for us? I know more about our rare disease than the doctors do.” She explained to me that it’s the doctors who will be able to find the best clinical studies for my boys and that I should reach out to them and let them know that I am interested in research studies even if it’s done by a fellow and not a “famous” doctor. I told her that some research is being done in France for parts of IFAP syndrome to which she said, “Sounds like that could be a nice vacation. I have patients in France. Try to contact the doctor facilitating the protocol and see if they know anyone in the U.S. also doing this research.”

The breakout session we attended was about participation in research studies. It was suggested to contact the pharmaceutical company of the medication the boys are on to see if there’s research studies we can take part in. Researchmatch was another application that was mentioned to connect patients to clinical studies.

I learned that there is a Rare Disease Advisory Counsel that I might try to join when I get some free time (lol free time, what is that?) NCH has a program called “Connecting families” where families who are newly diagnosed can speak with families who have been through it. It would be incredibly rare for someone to have IFAP but I am definitely interested in potentially helping another family facilitate life with a rare disease. There are also rare disease sibling support groups that I could look into later for Millie.

A week after the Rare Disease event, I was informed that our family qualified for, A Kid Again. It’s a nonprofit organization that offers free, monthly events and activities for families dealing with a life-threatening condition. They handle all the expenses and details, so that families can simply enjoy themselves. I was excited that we were given this opportunity but at the same time I felt bad because my sons have poor enough health to qualify. (I gave that to them, that compromised X chromosome.) The kids don’t age out until they’re twenty so we can experience these fun adventures for a while. I know they’ll be something we all look forward to. We will go to our first outing in April!

Baby

Baby No. 3

Featuredby motheringmillieLeave a Comment on Baby No. 3
Baby No. 3

Chris and I celebrated our 7 year wedding anniversary and four weeks later received a belated gift – we were pregnant. I told Chris by leaving clues around the house however, he was not thrilled by the news. (We had just come to the decision that we were going to wait another year before trying again…whoops.)

I did not tell our family until after the 8 week ultrasound and honestly, their reactions weren’t what I was expecting; my father-in-law said to Chris, “Come here and let me slap you.” My brother said, “Don’t you know about condoms?” My grandma said, “I’m never babysitting for you on your anniversary again.” All joking aside, it was incredibly disheartening.

Because we weren’t trying to get pregnant, I was anxious about what I did and did not do, not knowing I was pregnant. I wasn’t taking folic acid or a prenatal. I had been in a hot tub. I drank alcohol. My OB reassured me that everything would be okay and that I didn’t “mess up” the baby.

Chris and I celebrated my 30th birthday in Chicago while my in-laws watched Millie and Wells. This was the first time I had been away from Wells over night. We FaceTimed and bought the kids souvenirs. To my surprise, I didn’t feel nauseous at all and we did tons of walking, went on a skyscraper tour, sat in the sun, went to two concerts, and ate lots of different foods – zero illness or fatigue. It was a great trip.

A week after Chicago, the sickness set in. The OB recommended a vitamin and sleeping pill concoction to ease the nausea however, I didn’t feel comfortable taking it. Sleeping came easy and actually helped the nausea; I would be asleep in bed by 9pm. Wheat Thins, grapes, and unsweetened tea were my nutrition. Brushing my teeth and clearing my throat were the worst; I’d throw up every time.

I swore this baby was a girl; I was super sick when I was pregnant with Millie but not Wells. Chris and I decided that we were not going to find out the gender of this baby. Having a girl and boy already, we would be prepared either way. Many people were supportive of our wanting to be surprised. Our OB said that less than 5% of his pregnant patients wait to find out the gender. We were excited to give ourselves such a big surprise.

Like clockwork, at 14 weeks, I was no longer sick. I began taking one baby aspirin every night to best deter the preeclampsia I experienced with Millie. My newest ailment was a clicking in my lower back, which my OB called sciatic nerve pain. (I found out later that this was actually my SI joint.) It clicked the worst at night, going up and down the stairs, or if I was doing housework. I started going to a chiropractor that specialized in pregnancy adjustments and this seemed to help for about a week at a time.

We didn’t tell Millie and Wells about the pregnancy until they started to notice. Wells would smack my stomach and say, “Big, big belly.” Millie noticed when I picked her up from school one day and I was wearing a form fitting dress. She said, “Is there a baby in there?” Millie and Wells were both excited when we told them they would have a new sibling in March. Millie wanted the baby to be a girl and Wells of course, wanted the baby to be a boy. On the way to ballet one Saturday morning, Millie said from the backseat, “Mommy, let’s talk baby names. I like the name Cora.” Wells liked the name William (Baby Shark’s fish friend) and Catboy. We gravitated to calling the babe, New Baby.

At our 20 week ultrasound, we found out that the baby’s legs were measuring in the 7th percentile. We were concerned so the OB scheduled another ultrasound at 26 weeks to make sure the baby was developing appropriately. (At 26 weeks the baby’s femoral length was in the 14th percentile and the OB was not concerned.) I was struggling to connect with this pregnancy because I couldn’t call the baby by name. We decided to do a 3D ultrasound so that I could see the baby’s face. Millie and Wells came to this appointment with us. This baby was so cute and looked so much like his/her siblings.

Third trimester was rough. My hips ached, especially in the mornings, I had so much pelvic pressure, and I was peeing every hour. At 33 weeks, my ankles and feet got really swollen. I was instructed to go to labor and delivery to get preeclampsia blood panels drawn. Thankfully, everything came back normal and I was able to go home. The doctor on call had four children herself and gave me some advice on how to make it through the duration of my pregnancy. She recommended that I sleep on a wedge pillow instead of on my left side. Fortunately, my grandma had a wedge pillow that I could borrow and within two nights of using it to sleep, keeping my hips straight and not collapsed on each other, my hip and pelvic pain reduced significantly. This doctor also recommended pelvic floor therapy because she was confident I’d have a uterine prolapse in my future…terrifying. When I told this to my OB, he disagreed with her and said there was no validity to her statement. Only time will tell.

We celebrated Wells’ third birthday with a great party. Family and friends came and most everyone commented on how “big” I was. “You didn’t look this huge the last time I saw you!” and “You’re as big as an elephant.” and “Sit down. You’re making people feel bad.” and “You’re ready, aren’t you?” and “If you get any bigger, you’ll pop!” It’s bizarre how pregnancy gives people the freedom to speak upon another’s body. All I wanted to do was throw an awesome birthday party for Wells – no attention on my body or the new baby.

After Wells’ party, my schedule was free to welcome the new baby. Because we chose not to know the baby’s gender, I went through both Millie and Wells’ premie, newborn, and 0-3 month clothes and washed and organized them. Chris and I packed (and triple checked) our hospital bags, we set up childcare for Millie and Wells, I stocked the fridge, Chris set up the pack-and-play, all in preparation for the babe.

Two weeks after my first labor and delivery visit, my OB instructed me to go back in because of high blood pressure (140/95). My feet, ankles, and fingers were swollen. The back of my legs felt numb. I had gained 10lbs in a week. I developed a constant headache. Gestational hypertension had set in and my OB planned an induction for the day I hit 37 weeks. I was nervous, anxious, and excited all at once. While I was hooked up to the monitors, a nurse asked, “Are you feeling those contractions?” I thought I was just hungry. The monitor also showed two deviations in the baby’s heart rate. An ultrasound tech measured my amniotic fluid – all normal. I was told to report back to labor and delivery if my BP was higher than 160/110. I was to check my BP three times a day and elevate my feet as much as I could. I was released for the night with an invitation to come back the next week.

My last day at work was bitter sweet; I would definitely miss my students. My colleagues gave me good luck wishes but it wasn’t until I was asked, “Are you nervous? Giving birth is scary.” that it kicked in that I was leaving to have a baby. I started to tear up because with that one question, I felt seen. I was nervous. Yes, this was my third pregnancy but every delivery is different. The night of my induction, I procrastinated going to the hospital because of my nerves. At 12:30AM, Chris and I went to labor and delivery to start the induction.

Because of the time of my induction, the main hospital doors were no longer open and we had to enter through the emergency room doors. We were scanned and all our bags were searched. (Two hospital bags, my purse, my camera bag.) When we got up to the labor and delivery floor, we could tell they were working with a skeleton crew because it took at least ten minutes for anyone to check us in. When someone did come to enter my information, it was a elderly woman who struggled to type. I was hot, nervous, and getting increasingly anxious so I sat down in a wheel chair for the rest of the intake.

Almost an hour after we arrived, a nurse finally came into the delivery room. She was old and seemed completely clueless to the situation so naturally, my blood pressure started to elevate. She asked, “Why are you in today?” Are you kidding? The BP monitor started to beep. Pointing to the flashing screen I said, “That’s why.” I was hooked up to monitors, my IV was inserted, my temperature was taken, and I was Covid tested. The nurse asked me if I knew how my OB wanted to start the induction. How was I supposed to know? I asked Chris to pull up my blog post about Wells’ delivery. We found that I started with a cervix ripening medication called, Cervidil. The nurse requested this of the resident doctor who then explained to us that they do not use Cervidil anymore. He said we could start on Miso, which I remembered taking with Mills delivery. He inserted the Miso, told me to get a mole examined by a dermatologist, and the contractions started.

Just as I started to dose off, the head nurse came into the room to tell me that my Covid test came back positive. You’ve got to be kidding me. That morning, I felt really tired, dizzy, and anxious but I chalked it up to the hypertension. I remember texting a coworker that I was experiencing my “monthly illness” from the snot-nosed kids that we teach, and she responded, “I hope it’s not Covid, it’s going around again.” That prompted me to take an at-home Covid test, which came back negative and set me at ease. That afternoon, I had an appointment with my OB and I mentioned to him that I was not feeling well. When he checked to see if I was dilated, I almost passed out. I took a nap when I got home and on the way to the hospital, I told Chris that I was feeling much better – praise God because birthing a child is hard enough when you’re healthy. I asked the nurse to give me another Covid test – there’s a chance it could’ve been a false positive, right? She tested me a second time and it also came back positive. My mind was racing; did Millie and Wells get this? Will my in-laws get Covid from watching the kids? Will I have to isolate from the baby? I started to cry. My baby was inside my Covid-positive body and I was going to have to deliver being riddled by the virus.

The nurse reassured me that the treatment I would receive wouldn’t be any different from any other patient because I was Covid positive however, there were protocols and rules the hospital required:

– Anyone entering the room would be in full PPE. Chris and I were encouraged to mask.

– In addition to Chris, I could only have one additional visitor for the duration of my stay; no birth photographer for this delivery, Mill and Wells couldn’t come to the hospital to visit, and I had to chose between my mom and grandma in the delivery room.

– Chris could not leave the room to get ice, water, coffee, etc.

The head nurse told us that 90 percent of women who give birth while Covid positive, do not pass the virus to their newborn; this was reassuring. The baby would be Covid tested during the routine newborn check. She was optimistic that having Covid while pregnant would have given the baby antibodies that would be helpful once they were born. I prayed the baby would not be born with Covid or contract it from me once they were here.

At five am, my cervix was rechecked. The Miso softened my cervix but I hadn’t dilated much more. If time wasn’t an issue, I would’ve had another round of Miso however, my OB was getting on a plane for Chicago that evening and I desperately wanted my OB to be there. He knows my history, calms my anxiety, and he’s great at making sure I don’t tear. The resident doctor was adamant that a balloon foley was our quickest option for further dilation. I was nervous about this method because I had never had it done before. With the balloon foley, I would also have a urine catheter and I knew that would only add to my discomfort. The doctor said he was fine with me getting the epidural before the insertion of both catheters so I wouldn’t have to feel either. I asked, “How long does an epidural last?” It can be effective for 18-24 hours. I needed to have the baby before 6pm if I wanted my OB to deliver so that gave me 12 hours. We had a plan.

A lady entered the room and introduced herself as the CRNA, Certified Registered Nurse Anesthetist. She sat down and asked, “Are you in pain?” To which I replied, “Not yet.” She asked, “Why are we doing this epidural?” This question irritated me. Am I not paying thousands of dollars for this medicine? I went on to explain the rationale. Did she not discuss this with the doctor? She began to talk to me about first time mothers who are afraid of pain – I stopped her and said, “This is my third rodeo. I have given birth without an epidural but this time I am choosing not to. If you’d like to discuss this pain management plan with my doctor…” She changed her tune. “No no no.” She agreed to give me the epidural but told me it was going to be painful because she didn’t have the pains of the contractions to hide it in. I sat up on the side of the bed and prayed to God I wouldn’t be paralyzed.

The CRNA advised me to sit crisscrossed, if it was comfortable, while the epidural was administered. I told her I was an elementary school music teacher and sitting crisscrossed was second nature. Chris stood in front of me to my left and the nurse stood to my right. The numbing needle stung. Then came the pressure. It felt like the needle was tunneling it’s way into my body. We made small talk about her children’s piano lessons and the downtown construction. My right leg jolted out and I almost kicked the nurse. It was taking so long, why was it taking so long? Finally, it was over. A cold trickle ran down my back and within ten minutes, I was completely numb from the waist down.

The nurse inserted the urine catheter and the resident doctor inserted the balloon foley, both of which I couldn’t feel because of the epidural. At 12pm, the nurse tugged on the foley but it did not come out. An hour later, she pulled again, and the ballon popped right out; it was the size of a clementine and it dilated me to 5cms. At 2pm, the doctor broke my water with what looked like a crochet needle. When I couldn’t feel my water break, I began to feel anxious. I wanted the epidural to be less numbing. I felt so helpless; Chris and the nurse had to move my body on the peanut ball because I couldn’t lift my legs. I felt so heavy. The CRNA came in and instructed me that the medicine was working exactly how it should and even though I couldn’t feel my lower half, it was responsive.

My Maw rubbed my legs and Chris scratched my head. It was enough to calm me through the last centimeters of dilation. I told my nurse that I was feeling a lot of pressure in my rear so she checked my cervix and informed me that I was 10cms dilated. I felt glad. I felt ready. Before she called in the doctor, she asked me to do a practice push and as I pushed through my next contraction she said, “Okay, okay. Stop. Stop pushing.” The nurse got on her phone, “Room 105 is ready to push.”

The nurses were like a NASCAR pit crew; raising the bed, turning on the bright lights, gowning the doctor, all in preparation for the birth. I made small talk with my OB about the baby coming before his flight for Chicago. He said, “With your next contraction I want you to push.” I crunched my upper body towards my knees, bared down, and I heard him say, “slow, slow” but I couldn’t stop what was happening. My body was pushing the baby out. In one push, I felt the baby’s body leave mine. The doctor placed the baby on my chest and I heard my Maw ask, “What is it?” The nurse answered, “It’s a boy.” He was crying and soaking wet. “Happy Birthday, baby boy.”

Chris cut the umbilical cord for our third child. I was relieved to hear that I did not tear and my placenta came out in one piece. The nurse told me, “That was the most efficient labor I have ever seen.” My legs were starting to tingle as the epidural started to wear off; I welcomed that feeling over the anxiety I experienced with the numbness. I changed my gown and watched as the nurse examined the baby. The baby’s oxygen rate was low at first but after a minute of an oxygen mask nearby, it went to normal range. Chris was standing over him, talking to him, taking pictures, and telling me how beautiful he was. The nurse stamped the baby’s feet into the baby book. I noticed quickly that he had a gap between his first two toes like his father. The baby weighed 6lbs 9oz. He was brought back to me for skin-to-skin.

This sweet, alert, baby boy latched quickly. He held on tightly to his daddy’s finger. He passed his newborn checks and scored a 9 on the Apgar scale. He tested negative for Covid; thank you, Jesus. He cried while he was given his first bath but once we was all clean, he calmed and we were able to take pictures of him on the hospital bed in the same position as Millie and Wells when they were born. Everything was going perfectly until he lost 12% of his body weight.

After many visits with the lactation consultant, I agreed to supplement his feeding with donor breast milk while my supply was still coming in. I would feed him from the breast and then pump. While I pumped, he was fed the bottle of donor milk. After 24 hours of feeding this way, he gained a little weight back.

I desperately wanted to go home. I missed Millie and Wells like crazy. I also knew my milk supply would increase in the peace of my own space. The doctors were okay with us taking him home as long as we took formula with us as a means of supplementation. We agreed, signed the appropriate papers and headed home to introduce Millie and Wells to their new baby brother, Crosby James.

Baby

My Baby, My Genes

Featuredby motheringmillieLeave a Comment on My Baby, My Genes
My Baby, My Genes

I’ve found that given time, life does not disappoint in writing material.

I hate this post. I hate writing this post.

Wells was born with an interesting hairline on the back of his head. At twelve months, we took him to get his first haircut and the hairdresser said, “He won’t grow hair there.”

At 18 months old, Wells lost his eyebrows. How does one lose their eyebrows? We chalked it up to KP (Keratosis Pilaris) a skin condition that Wells has and I also have, which can block hair follicles.

Wells wasn’t saying words like the pediatrician’s developmental survey suggested. We brought this up to the doctor and she said, “Let’s give it six months and see what happens.”

Wells’ speech did not improve. He was frustrated when trying to communicate and I contacted a state funded program and got him into speech therapy. Problem solved, right?

We saw the pediatrician six more times within a two month period because of Wells’ eyes. He lost all of his eyelashes. He had a “gunk” that no drops or ointment was alleviating. We were worried about his vision.

The pediatrician told me that she was suspicious that Wells’ medical issues could be linked to a genetic disorder or an auto-immune disease. What? Chris and I didn’t have any genetic markers. We don’t have any auto-immune diseases in our family. I was scared and defensive. She explained that he had many issues; his hair, his skin, his eyes, his developmental delay. Every issue could be a stand-alone problem or it could be tied to something more. She promised she would look into it but in the meantime, she recommended an ophthalmologist to take a look at his eyes.

The ophthalmologist was quick to tell us that Wells’ tear ducts must be blocked in his nasal passageway. His tears were backing up and creating excess mucus in his eyes. She could do a surgical procedure to put in temporary tubes to help his tears drain correctly. We asked her if this issue was linked to any other disorder that she knew of and she said, “Not at all. It’ll be fixed in six months time.” We mentioned Wells’ severe eye sensitivity which she thought was being caused by his many eye treatments. She referred us to an ENT before we scheduled the procedure because of his constant nasal drip.

The ENT saw inflamed nasal passageways. He was confident that Wells’ adenoids needed to be removed. As a last ditch effort to stop the drainage, the ENT prescribed Wells a ten day, antibiotic steroid however, when that didn’t work, we scheduled the adenoidectomy. The ENT also referred Wells to an audiologist after I informed him of Wells’ speech delay. Wells passed the hearing test.

Wells did not want to wear the hospital gown for surgery. The best advice I was given was from my best friend, Lindsey who told me to ask for anxiety medicine for Wells before he went into surgery. Once that was in his system, he was loopy and fine with going back to the surgical room. (I was a crying mess.)

The ENT was able to perform the adenoidectomy while Wells was under the anesthesia from his eye tube surgery. The doctor relayed to us that Wells’ adenoids were enlarged and had pockets of puss; we were glad they were removed. The eye doctor informed us that the eye tubes were inserted perfectly and she was able to fully examine his eyes. She explained to us that Wells had blocked oil glands on his eye lids and because of this, his eyes were not making the correct balance of moisture (water, oil, and mucus). She prescribed a steroidal ointment to try to get the inflammation down on his eyelids so that the oil glands could open.

It was difficult for Wells when he came off the anesthesia. He ripped his IV out and blood got everywhere. He cried for a long time. Once he started drinking, the nurses said we could take him home. I got him a whale balloon from the gift shop that came off it’s string in the parking garage. Chris got on top of the Jeep to rescue it. Wells was happy to eat as much non-dairy ice-cream as he wanted. He had a lot of dried blood on his face the next morning and his breath smelled terrible for a week because of the scabbing.

Six weeks later we went back to the ophthalmologist for a follow up appointment. The ophthalmologist was not thrilled with the results and either were we. Wells’ eyes were still over producing mucus and tears. His eyes were still incredibly sensitive to light. We made an appointment to remove the eye tubes and she referred us to a cornea specialist for further examination.

Our ENT visit was much of the same – disappointing. He still saw significant inflammation in Wells’ nasal passages. He recommended that we see an allergist to rule out environmental allergies for the cause of his inflammation and continued nasal drip.

Our next appointment was with the dermatologist, an appointment that was scheduled six months prior. (Hindsight 20/20 I wish this would’ve been the first appointment we went to.) We spoke to the doctor about Wells’ hair loss. We were very concerned with the condition of his skin. We told her about his recent ENT and eye appointments, as well as his speech delay. The dermatologist was hesitant to say anything definitively but she believed it to be Alopecia Areata, an autoimmune disease that targets inflammation of the hair follicles. She went to get another dermatologist for a second opinion and I cried thinking about the struggles Wells would have to endure.

The next dermatologist was not sold on an Alopecia Areata diagnosis because it would be unusual for the hair loss to start with the eyebrows and eyelashes. She asked us more questions about Wells and his different medical issues when she noticed Wells squinting while looking at my phone screen. She asked, “One final question, does Wells have light sensitivity?” Wells has had severe light sensitivity his entire life. When he is in the sun he must wear a hat and sunglasses or his eyes will roll to the back of his head. His eyes water uncontrollably in bright light. The night before our appointment, Wells complained to us that the TV was too bright. When we told her this information she said, “I have only seen this once, a long time ago during residency, but I think Wells might have a genetic disorder called IFAP.”

The dermatologist was positive that Wells’ issues were being caused by an autoimmune disease or a genetic disorder but she couldn’t be sure which without a blood test. Genetic testing is incredibly expensive so she put in an order through our insurance which took a couple of weeks to get approved. In the meantime, she wanted us to use topical cream for Alopecia just in case that would’ve worked, we would know that the inflammation was caused by the autoimmune disease and we wouldn’t have needed to go through the genetic testing. Not only were these topical meds expensive, I didn’t want to put Wells on any steroids that weren’t absolutely going to solve his problem. Once the order for the blood draw cleared through the insurance, the dermatologist put in an order for the lab to draw blood and check his DNA for two specific compromised genes associated with IFAP syndrome.

Wells’ blood was sent out to a lab in California. The test concluded that his LRP1 gene and MBTPS2 gene were compromised. We were contacted by the dermatologist almost immediately after receiving these results and she confirmed that Wells has the genetic condition, IFAP. IFAP stands for Ichthyosis Follicularis, Alopecia, and Photophobia. IF – his skin, A – his hair loss, and P – his eye sensitivity. This syndrome is a rare X-linked genetic disorder reported in only 40 patients, ever. Don’t Google pictures. My poor baby.

Known to occur in people with IFAP syndrome is corneal abnormalities including a defective tear film and recurrent atopic keratoconjunctival inflammations (exactly what was happening with Wells’ eyes). Did we need to do the tear duct surgery? No. That was never going to fix Wells’ eye issues however, at the time, we were unaware of this genetic disorder. We have since informed the ophthalmologist, who had never heard of IFAP syndrome, of Wells’ diagnosis and she is now researching other cases to better help Wells.

The steroidal cream that Wells was prescribed after his ocular surgery was too strong to be used long term; it could cause too much pressure in the eyes which could lead to glaucoma. We now have to administer an eye drop four times a day and it is not fun, Wells fights us every time. We found out that the drops burn and blur his vision (I contacted the cornea specialist about how it was a terrible experience every time we’d administer his eye drops and she informed us that they are not pleasant but entirely necessary.) It’s been incredibly difficult. He is scheduled to get the eye tubes removed next month as well as a more thorough eye exam by the cornea specialist, all while under anesthesia.

It was time to see the allergist. The ENT wanted to rule out food and environmental allergies for the cause of his nasal drip and inflammation. We explained to the allergist that Wells had been recently diagnosed with IFAP syndrome and that eye and nasal lacrimation are common symptoms of this rare disorder. The doctor called for a full allergy panel, which was administered into Wells’ back. He sat on my lap, facing me, while the nurse pressed the spokes into his skin. He cried and it upset Millie, who came to this appointment. The nurse came back with popsicles for both of them and they were instantly calmed. After ten minutes, the test was complete and Wells showed no signs of allergies. The allergist concluded that any drainage Wells was experiencing was not food or environment related. We were able to rule out allergies and add these drippy symptoms to the list of IFAP complications in Wells’ case.

To better understand IFAP syndrome and what it means for Wells and our family, we saw a geneticist and a genetic counselor. The geneticist was extremely transparent about how fortunate we were to have a doctor (his dermatologist) recognize this syndrome and to “cherry-pick” which chromosomes to test in Wells’ DNA. He told us that there are only 9 recorded cases to have the same mutation as Wells. This syndrome goes undiagnosed because people with these issues do not connect their problems to one diagnosis, and even if they do, they do not know where to begin (the expense of funding a wild-goose-chase of genetic lab work is astronomical). The geneticist believed IFAP to be congenital, meaning the severity of which Wells was born with, will be what he has; for example, he won’t develop mental retardation (a symptom some experience with IFAP). We will see the geneticist yearly to update him on Wells’ developments to hopefully help others learn about this syndrome. He also gave us his card if our new baby is a boy. This way, he can order genetic labs right away.

It was the genetic counselor who explained to us how Wells acquired IFAP syndrome. Males have an X and a Y chromosome, I gave Wells one of my X chromosomes and Chris gave Wells his Y (I couldn’t give Wells a Y chromosome because I don’t have one, I have two X chromosomes because I’m a female). One of my X chromosomes is normal and the other X chromosome is compromised. Because I have one good X, my symptoms of IFAP are lessened therefore, I’m a carrier of the syndrome. Unfortunately, the X that I passed onto Wells was my compromised X chromosome. He doesn’t have another X to combat the compromised X, so his symptoms of IFAP are full force. My father has all of Wells’ same symptoms. His mother, my paternal grandmother, is a carrier. Her father had these same symptoms. The genetic counselor said this is a males syndrome; they give it to their daughters who become carriers, and those daughters give the syndrome to their sons.

Millie could be a carrier for IFAP syndrome. I could have given her my compromised X but so far, she doesn’t have any IFAP symptoms. She can chose to be genetically tested before she decides to reproduce. If she is a carrier and has a boy, he would have a 50% chance of having IFAP syndrome.

When baby number three is born (we do not know gender) and if the baby is a boy, blood will be drawn while we are in the hospital to be sent to the lab to test for IFAP. At this point, I am hoping that this new baby is a girl OR a boy with my non-compromised X chromosome.

Severe cases of IFAP have noted kidney abnormalities. To make sure Wells’ kidneys developed correctly we took him to get an ultrasound. He was such a brave boy when he was laying on the table. I put my head next to his and we sang Mickey songs together. The tech ran the ultrasound on his belly and his back. She complimented Wells on how well he did and me on my singing. We received the results within the next hour. Wells’ kidneys were sonographically normal and in the normal range for renal dimension. This was a great relief.

In some cases of IFAP, mental retardation is present. With Wells’ CAS (childhood apraxia of speech) diagnosis, we were referred to a neurologist to make sure Wells’ brain was appropriately developed. When we arrived, the nurse gave Wells a sheet of emoji stickers that he stuck to the patient table in a circle and pretended to play duck-duck-goose with them – it was adorable. The neurologist was unfamiliar with IFAP and wanted to test Wells to get a baseline of his development. She asked him questions like, “touch the door, after touching the floor”. She had him stand on one leg. She asked him to point to certain colors, what his best friend’s name was (he said Mia), and to sing his favorite song (the PJ Mask theme song). She was aware of his apraxia and noted that she observed this in his speech however, everything else she tested him on was either developmentally appropriate or advanced for his age. We were thrilled.

The neurologist explained to us that 28-30% of children with IFAP develop seizures. She told us what to look out for if Wells starts to seize and that sometimes seizures don’t look like they do in the movies; he could stare off and not come out of it, one limb could rhythmically move, etc. We have a plan moving forward if he develops this part of the syndrome and until then, Wells does not need to see neurology on a regular basis.

Most recently, we went back to the ENT for the final follow up for Wells’ adenoidectomy. Unfortunately, Wells continues to have a nasal drip. After being tested by the allergist at the ENT’s request, we found that Wells has no allergies alas, his nasal drip is not caused by allergies. The doctor checked to make sure Wells hadn’t put anything up his nose (he did not). He checked his ears and throat (both of which looked great). It was determined that Wells’ drainage is IFAP related but to what extent, the ENT wasn’t sure. While he discusses the possibilities of why this is happening with the geneticist, he put Wells on a steroidal nasal spray to reduce his inflammation. The ENT believes this will be a chronic issue for Wells.

Through the Ohio Department of Health we are in the process of applying for CMH which stands for Children with Medical Handicaps. This health care program will help to offset the costs of Wells’ medical needs.

This diagnosis is beyond scary. All I want to do is help my baby and take this away for him. Unbeknownst to me, I was the one to give this to him. There is a perpetual feeling of guilt that I have to suppress as I need to focus on what Wells is going through and his needs. I will forever be his advocate as we navigate this syndrome, together.

Baby

Wells’ Speech Part 2

by motheringmillieLeave a Comment on Wells’ Speech Part 2
Wells’ Speech Part 2

Wells’ speech therapist’s contract was not being renewed by the Help Me Grow organization that Wells receives services. We were devastated to hear this because Wells had gotten comfortable with her. At our last session, she gave me a packet of information about a motor speech disability called, Apraxia. After working with Wells for six months, it was her professional opinion that I look into this with his next speech therapist. Huh? – I thought he was just a little behind…

Before meeting with his new therapist, I Googled Childhood Apraxia of Speech. I learned that it’s an uncommon disorder where Wells would have difficulty making accurate motor movements when speaking. In CAS, the brain struggles to develop plans for speech movement. With this disorder, the speech muscles aren’t weak, they just don’t perform normally because the brain has difficulty directing the movements. CAS is treated with speech therapy and the Help Me Grow program set Wells up with a speech therapist who has advanced training and expertise in Apraxia.

Jody, his new speech therapist, met with us to give Wells an evaluation. She heard the dropping of consonants, the inconsistency of speech patterns, and saw his frustration when we couldn’t understand what he was trying to say. She was quick to inform us that while CAS couldn’t be diagnosed until age four, Wells most certainly has a motor speech delay – something he won’t just grow out of. Therapy is the only treatment for CAS and we go two/three times a week.

When we repeat words how Wells pronounces them, back to him for example, “ickey” for Mickey, he tells us we’re saying it wrong. He knows how words are supposed to sound, he just can’t make his mouth do it. It’s heartbreaking to see him struggle. To speak correctly, Wells’ brain has to learn how to make plans that tell his speech muscles how to move his lips, jaw and tongue in ways that result in accurate sounds with normal speed and rhythm. He can make the “m” sound however, he cannot connect it so it sounds like “mmm” space “icky”.

In six months, Wells has mastered isolated consonant sounds “h”, “m”, “s”, “p”, “b”, “f”, “w”, and “sh” at the beginning of words. We are practicing those sounds with syllable combinations ie. “fa” and “moo”. Kinesthetic movements help Wells remember how to correctly manipulate his mouth. Right now, we are working on the word, “open”. He does not naturally put the “p” sound in the middle of the word. We practice by making a big, “o” with our arms and then move our hand under our chin like we’re blowing a kiss. When the words are broken down, Wells has more success.

Wells will no longer receive paid services through the Help Me Grow organization when he turns three. At three years old, children can receive disability services through their public school system (pre-k). We have decided to not enroll Wells in the pre-k program through our district. The school only offers a half-day service, four days out of the week and that does not work with our work schedules. To make sure Wells is supported with his speech needs, we will continue to see Jody and charge our health insurance for the visits.

Speech therapy at two years old : Wells often falls asleep in the car before we get to speech therapy. He runs down the hallway like Sonic, and counts the stairs when we leave. When he wears snow or rain boots, they often get in his way during floor activities so they usually get thrown off. Wells will randomly get into a yoga pose. If an animal is brought up, like a frog or bunny, he’ll act it out. It’s fun and I’m always proud of him.

Baby

Summer of 22

by motheringmillieLeave a Comment on Summer of 22
Summer of 22

Adventures from June-August; kinda like a list, more like a diary entry. A post to remember this summer.

We kicked off the summer with a trip to Louisville, Kentucky. We were visiting friends, Kristin and Kyle (Wells’ Godparents), and planned to see a botanical garden along the way however, it poured down rain. We changed plans to an indoor adventure instead. We stopped at the Louisville Slugger Museum to see the worlds largest baseball bat. The ivy on the wall and the hall of fame stars on the sidewalk were super cool. Millie picked out a pack of Chicago Cubs baseball cards and Wells loved swinging his blue, souvenir bat. We stayed the night with the Merkle’s, where the kids loved playing baseball in the basement with Uncle Kyle, and in the morning we left for the Cincinnati Zoo.

We used our Wonderfold Wagon at the zoo. There were a lot of hills so Chris was the one doing the pushing. Many people complimented our wagon and asked us questions about it. Millie and Wells have the freedom to move around while also being safe; I love it and wish we would’ve bought it sooner. We fed the giraffes expensive pieces of lettuce, ate at the food court, and saw the sifakas jumping around. Both kids love Fiona, the premature hippo who’s basically a celebrity now that Cincinnati needed some positive press after the death of Harambe (R.I.P).

The next weekend we went strawberry picking. I was inspired by a friends Instagram story; I never knew Ohio had strawberry fields. Chris has fond memories of strawberry picking as a kid and both Millie and Wells love to eat strawberries so I figured this was something fun we could do as a family. We were given two buckets and were told the best area for the ripest strawberries. We were surprised by how small they were compared to the strawberries we buy from the store. Wells was not interested in picking but he was interested in eating them! He sat down in the strawberry plants and turned the caboose of his khakis, pink. Millie was not enthused about touching the berries, especially the over-ripe ones that felt “squishy”.

Unfortunately, both Millie and Wells started this summer with a nasty cold; the snot was never ending. We seem to catch every germ. We wanted to play with friends and explore new places but we also wanted to keep everyone safe. Monday, Wells took his first bath in the sink. While Chris and I attempted a tile reno, I sat Wells on the counter to play in the sink water. Before I knew it, Wells had sat in the sink, fully clothed. I stripped him down and let him play in the water. On Tuesday, we roasted marshmallows using our tabletop fire pit. Neither kid enjoyed the taste of burnt marshmallows. Wednesday, we went to the thrift store and bought a water table, two ladles, and a new bathing suit for Millie. Wells tried to feed me octopus soup! We had a great time playing outside and eating strawberries! Thursday we ran errands, Millie had a fever, Aunt Lindsey came over, and Grandpa came into town. Friday we went to the library and signed up for the summer reading program. Wells very clearly said, “library”. I am so proud of how hard he’s working to communicate.

Here were some of their favorite reads:

No Pants by Jacob Grant

1, 2, 3, Jump! by Lisl H. Detlefsen

Goldfish on Vacation by Sally Lloyd-Jones

The Flower Man a wordless book by Mark Ludy

June went by entirely too fast. The kids enjoyed finger painting, chalking, and bubble blowing. We saw lots of family members at my cousin Carson’s graduation party and afterward both kids got to order their own pizza from Mod (Millie says she won’t be putting cucumber on her pizza again). We went to Hobby Lobby to get a decorative welcome mat for my mom who just bought a condo in Ohio and while I pushed Wells in the cart, he scared an old lady who was passing by! He said, “Ah!” and pointed at her as soon as she turned down our aisle. He’s a rascal. My in-laws came to town and we went out to eat at BrewDog to celebrate the closing of their new home. (The kids are getting ready to have all of their grandparents in Ohio!) Millie ate a vegan hamburger meal and Wells ate a soft pretzel. Wells enjoyed playing ladder toss, outside, after the meal.

July started with COVID. I went to a worship concert, unmasked, and another woman I went with tested positive after, too. The worst part of it was we were sick during the Fourth of July and my cousin Donaven, who’s currently serving our country in the Navy, came home to visit. Thankfully, we still got to see him (from six feet away). The kids watched Red, White, and Boom on the T.V while eating banana splits in their sleeping bags. Our town set off fireworks at the local high school that we could see from our backyard, too!

We have season passes to the Franklin Park Conservatory and explored the children’s garden with Lindsey, Logan, and Ben. The kids enjoyed pushing the hula hoops down the hill, watching and performing puppet shows with mangy-looking puppets, playing restaurant with the plastic food in the mud house, and pretending like they were birds making a nest of sticks. Wells spent time at the koi pond watching the fish. He was fascinated by the toy train. Wells was apprehensive about wading in the sandstone creek and wouldn’t let go of my hand but he grew confident and explored on his own.

Food competitions are regularly watched in our home – we’re currently undertaking Master Chef. We decided to have a baking competition of our own. Millie, Wells, and I mixed the cupcake batter and of course, they licked the beaters. We’re vegan. No raw eggs were consumed. Mills were topped with hot pink icing and Wells’ were blue. Of course the icing stained their lips and teeth. I let them add sprinkles and we tasted both cupcakes. It was decided that Millie’s tasted better because her sprinkles were less crunchy than the ones that Wells used. The cupcakes were served on Mickey and Minnie Mouse plastic party plates that the kids wouldn’t let me not buy at the store.

I got the feeling like we weren’t doing enough with the kids this summer. (Now that I’m typing everything out I can see that was absurd and just my anxiety.) I think because last summer we spent a week at the beach – financially, that wasn’t in the plans this year, I still wanted to do something special. I looked for activities relatively close so that we could plan a day trip. I had friends go visit the Ark Encounter in Kentucky and really love it. Chris was on board with the trip so we left on a rainy, Saturday morning. What better weather to visit the Ark? The car ride was three hours long but the kids rode perfectly. We took Noah’s Ark books to read along the way and we ate Tim Hortons; they love the birthday sprinkled Timbits.

When we got to the Ark, we had to take a charter bus to get on location. Wells thought he was hot stuff getting to sit in his own bus seat. Millie was so excited to see the beautiful, bright rainbow arch (Gods promise) entering the complex. The Ark was insanely massive; bigger than I could’ve ever imagined (the dimensions are actually listed in the Bible). I thought the kids would be overwhelmed by the size but they were excited to see the different exhibits inside. Millie thought the ancient animals (wax models) in the cages were creepy.

There was a petting zoo on location with lots of goats. Millie did not touch the goats (I don’t blame her – poop pellets were everywhere.) We got to watch a live, animal show with a scorpion (which glows under a black light – who knew?) a sugar glider (which made us miss Cooper), and a pig named, Festus that the kids got in stuffed form at the gift shop on the way out. The buffet on location was delicious and super accommodating to our vegan diet. There was a really awesome playground but Amelia got knocked over and the fun was over. Both kids fell asleep as soon as they were strapped in their car seats and slept the entire way home.

The next week of summer vacation was packed with fun activities. Millie and Wells made crown crafts from the library and decorated them with gems and stickers. We went to the pool and Millie went under the water with MawMaw (she did not like it). We took a trip to the Columbus Zoo with my friend Katey and saw the elephant baby, Frankie for the first time (He was so fuzzy!). Uncle Nick’s girlfriend came to town and we all went out to eat at CapCity Diner; it was our first time eating there, they gave us a private room, and the food was delicious!

Our last weekend of July was spent in Ligonier, Pennsylvania with our friends, and Millie’s Godparents, Jane and Todd and their two children, Maisey and Luca. Of course Mille and Wells were excited about Daniel Tiger’s Neighborhood but they were most anxious to see their friends. The night before we were supposed to leave, Wells tripped in his crocs while helping me water the neighbors flowers. I could tell by his cry that he was in a lot of pain. He wasn’t bearing any weight on his left foot. Immediately, I knew he could have a toddlers fracture. We let him sleep it off and examined him the next morning. He was putting weight on the injured foot but was still limping. We decided to go forward with our PA trip and keep him mostly in the stroller. If his foot got worse, we’d have no choice but to get it checked out.

To start our road-trip, we grabbed Tim Hortons and I entertained the kids by putting Mickey Mouse characters on Chris’ seat (it’s the little things). Once we got there and met up with our friends, we went to the water park and the girls immediately ran to the kiddie splash area. Maisey wasn’t afraid to put her head under the water but Millie wasn’t trying it. Maise ended up drinking a lot of the water and was sick later in the evening, poor girl. Wells and I ended up standing under a bucket that poured an intense amount of water on my back. We had a great time swimming together. Luca dirtied a diaper and we put on dry clothes to enjoy the amusement park.

We grabbed a soft pretzel and some lemonade before watching the end of a Daniel Tiger show. There was a meet and greet afterward with Katerina and Daniel – Wells stayed on my hip and Millie was just curious enough to wave to them from afar. We rode on Trolley through the neighborhood (Millie informed Maisey that all the characters were made out of cardboard) and the weather shifted. Just before the sky opened up, we ran back to the parking lot and managed to stay dry while it stormed the rest of the afternoon.

After a thirty minute drive, we checked into our hotel. We met up with Jayne, Todd, Maisey, and Luca for dinner at a restaurant called, Sharkys. Wells loved their aquarium and we loved the food. That night, we all changed into our pjs and played games in the hotel lobby. The kids exchanged gifts, colored My Little Ponies, played with clay, ate sprinkled popcorn, had a dance party; it was awesome.

In the morning, we shared a breakfast table with the DiMascio’s and said our goodbyes. We left for the Pittsburgh Children’s Museum where they had a Daniel Tiger exhibit. The exhibit was amazing; it looked just like the show had come to life. We saw some of the original puppets from Mr.Rodgers’ Neighborhood and Mr.Rodgers’ red sweater. Wells enjoyed building Daniels neighborhood with blocks. Millie added a leaf to the “thank you” tree. The kids loved the interactive clock shop and the musical radio.

The rest of the Pittsburgh Children’s Museum was also loads of fun for the kids. Millie climbed up a super tall rope web, they launched balls on a track with a pulley system, they made car ramps, and created a musical assembly line. Wells and I went into a room at an angle. I literally ran us both into a wall (my knee caught the brunt of it.) Millie loved playing with the sand art and Wells liked the seesaw that blew bubbles. We grabbed a snack at the cafe before we left; Wells loved the bite-sized pancakes. The yellow bridges leaving Pittsburgh were cool. We definitely will visit PA again.

August was a blur. I started to have back-to-school meetings and by the 22nd we were all in. I tried to make each day we had left together, special. We visited the Columbus Zoo with my dad; the kids always have a great time with Papa. He rode on the carousel and bought them blue and pink cotton candy. Wells tried to feed the baby gorilla popcorn and the baby fell backwards! It was so sweet. We went to the Ohio State Fair with Chris’ parents (Grandma and Grandpa), his brother (Uncle Nick), and my friend Shauna. Both kids enjoyed riding on the rides and eating pineapple whip! We even watched a pig race. We swam a couple more times at Mawmaw’s pool; Millie was brave and went down the water slide! At home, we made cement garden stones, played with modo (a fragrance free play-dough), baked banana bread, and completed craft kits.

For my 30th birthday, Chris took me to Chicago. This was the first time that I spent a night away from Wells and we were gone for more than 48 hours. Chris’ parents stayed at our house and we FaceTimed them often. Both kids slept well for them! I was so impressed. My babies are growing up and it’s hard to believe that they won’t stay 4 and 2 forever.

Baby

Weekend Getaway

by motheringmillieLeave a Comment on Weekend Getaway
Weekend Getaway

Chris had a week off of work before he started his new job at Boeing and to spend some quality, family time together, I planned us a two-day mini getaway. Through Groupon, I booked a night at Great Wolf Lodge for $119 (I was amazed at what was included for that price. That’s how much a regular hotel room would cost and this one had an indoor water park!). I packed up the food, buckled the kids into the Jeep, and when I checked our reservation to GPS the address to the hotel, I realized I booked the wrong one. (Insert face palm here.)

We were supposed to be headed south for one hour however, I booked our reservation at the Great Wolf Lodge two hours north of us! I quickly called Great Wolf’s customer service and they were extremely accommodating. Within ten minutes we had everything figured out; I cancelled my incorrect reservation and made a new reservation at the correct lodge. Thankfully, this resort had rooms available and because of COVID, they were not charging cancelation fees.

Walking into the lobby at Great Wolf was like entering a log cabin mansion. There were carved tree statues and signs, taxidermied animals, log stumps for chairs, etc. Ropes led the way to check-in and because it was a weekday after 4pm, I walked right up to the counter. We were given wristbands that doubled as our our room keys and a schedule of all the children’s activities at the lodge. I met Chris back in the parking lot and we lugged the kids and our overnight bags up to our room. The room was decorated like a hunting lodge; antlers as light fixtures and moose prints on the carpet. The room itself was incredibly spacious. It had a sitting area, a table and chairs, a mini fridge, and a microwave. The kids were so excited to be someplace new. Millie picked out her bed, our room had two queens, and we got our bathing suits on for a night in the water park!

It was 6pm when we walked the kids down the hall in their hooded towels, looking like baby Jedi, to go to the water park. The children we passed were melting down, “I don’t want to leave the pool!” Chris and I nodded at the parents for emotional support. Every family there looked like us; frazzled, tending to children’s needs, and over weight (No judgement – I felt comfortable letting my stretch marks show!). We felt like we found our people. Many families were leaving the water park when we were just arriving. We were grateful to be getting there at a less populated time.

As we walked into to the water park, we were confronted with humidity and the smell of chlorine, both of which we welcomed compared to the frigid, weather outside. The sound of rushing water and children shouting made it hard to hear Wells saying, “wow” as he was taking in his surroundings; I could read his lips and paired with the astonished facial expression, it felt like a mom win. We started in water that was knee deep and it was the perfect temperature. Millie saw the slides and fearlessly slid down them with Wells and Me at the bottom to catch her from going under. Reluctantly, Wells went down the slide but after he realized it was fun, we couldn’t tear him away.

It was nice to be able to let the kids play in water without coating them in sunscreen. Wells loved the water squirting out from the fountains in the floor. He would put his foot overtop of the holes and blast himself and others with the water pressure. Millie didn’t want to go down any of the big slides and we didn’t push her to. Both kids liked the warmth of the “hot springs” which we called, the hot tub for babies. Wells laughed each time he felt the warm water (Maw said that meant he was probably peeing). Hindsight, I have read some disgusting facts about hot tubs and there were way too many strangers sharing that water.

I was so anxious watching Millie and Wells play on the water structures. The bigger kids, water buckets spilling over, slippery stair steps – it was enough to give me a heart attack but both kids loved the adventure and independence. There were basketball hoops and balls and we enjoyed passing the basketball through the water to each other. Millie and Wells were not fond of the waves in the wave pool but that didn’t surprise me because both my kids have a tendency to get motion sick, like me. I remember feeling motion sick as a child treading water in the wave pool at Wyandotte Lake, I’m aging myself; it’s Zoombeezi Bay now.

After two hours of playing, their lips were turning a light purple hue and their toes and fingers were shriveled. We went back to the room, changed into dry clothes, and went down the the arcade to play some games. Chris loaded money onto an arcade card and the kids went wild. Millie and Wells got to play a game together where they sat in a firetruck and used squirt guns as hoses to put out fires. They also got to ride on little motorcycles and race. The tickets they compiled were enough to get some smarties, a package of car stickers, and a mermaid pen (it was the last mermaid pen in the bunch and Millie was very excited about it).

As we walked upstairs to head back to our room, we heard music coming from the lobby. We stopped in and joined a nighttime dance party! It was so funny, Wells walked straight into a group of kids and started dancing without a care. When the dancing was over, Wells decided he was going to get on the stage. I chased him down and in the meantime, some boys with bubble wands were putting their bubbles over Mills head. She was showing some annoyance with getting soapy and Wells saw this and decided he didn’t like what was happening. He grabbed Millie’s hand and walked her away from the boys after giving them a serious, baby babbling talking-to.

Before we went back to our room, we let the kids get rock candy at the candy store. Of course Wells chose blue and Millie, pink. The store looked like Willy Wonka’s factory. We walked back to our room and ate a late night snack before bed; potato chips and Oreos. The bed felt sandy from all the crumbs that landed on the blankets. Mill chose to sleep with her dad and Wells slept with me. He dream-fed basically all night so my sleep sucked and morning came early. Bananas, grapes, and vegan sausage sandwiches were for breakfast.

Checkout was at 11am. Chris packed up our things; our singular suitcase full of the clothes we no longer needed. He packed a tote bag with our water park needs and clothes to change into after. (This was the only part of the trip that I did not enjoy because of the hustle and bustle of trying to check out in time. Not to mention, changing ourselves and the kids at the water park was chaotic.) If we do this again, we will not go to the water park on the day we leave.

The kids were just as excited to be at the water park the second time as they were the first. We met a nice family in the hot springs that reminded me of the Newport Aquarium only thirty minutes away from the resort. While the kids ate lunch on beach chairs, I bought tickets for Wells to see some sharks. Changing the kids from their wet bathing suits into dry clothes in the damp, resort bathroom was not fun. Also, because it was going to be freezing outside, we were changing into sweaters in the heat of the humid park and that felt gross. Walking out into the thirty degree weather actually felt refreshing.

Both kids fell asleep in the car on the way to the aquarium. Finding parking in a new place is always stressful for Chris and me but once we did, we woke up the kids, and made our way across the Levee. We found the aquarium and I was irritated before we walked through the doors; the listed operating hours differed from the automated machine I listened to before I bought our tickets. We had less time to explore the aquarium than I expected and when I spoke to the ticket office about the discrepancy, they admitted that they had not updated their automated service and the manager refunded us half our money back for the inconvenience. I was impressed by the customer service and was ready to have a good time with Millie and Wells at the aquarium.

The fish in this aquarium were unlike any we’d ever seen; different species of seahorses, prehistoric-air-breathing fish, stingray sharks, etc. The most breathtaking moment happened when a giant sea turtle made eye contact with Wells and started swimming to him. We were the only ones in that exhibit and it was magical. We were lucky to catch this moment on video. Months later, Wells still watches the sea turtle video with amazement.

One of the exhibits had a coloring station where you would color a fish, scan it into a machine, and your colored fish would show up, swimming on a digital aquarium screen. It was really cool! I colored a fish with eighth notes but the technology mirrored the image and the note heads were backward (that still bugs me a month later). A little girl at the penguin exhibit asked Millie her name, and Mill proudly stated her full name and her age. She held up the correct number of fingers and then she asked the girl her name. The little girl introduced herself as Ry-Ry. Wells put his hand on his chest and very clearly said, “Wells”. I looked over at Chris and started to tear up. Not only did he understand to introduce himself in that social setting, but he did it with such clarity and confidence. My whole heart welled with pride.

Both babes slept the two hour car ride home. I was exhausted from the trip but managed to prepare and eat dinner, bathe the kids, unpack the over night bag, and crawl into bed by ten. It was difficult waking up for work the next morning but the trip happening mid-week made the weekend come quick. Millie was so excited to call the grandparents and tell them all about her experience. She wants them all to be with us the next time we go to Great Wolf Lodge. A quick vacation with lasting memories.